Dan’s story as told by Dan’s dad, and Emmett’s Genies trustee, Dave. In the last couple of weeks of his 2018 summer holiday, Daniel or Dan but never Danny, Chang started complaining of pain in his back. Things changed very rapidly over three days and ended with Dan waking up on a Friday morning not […]
Written by Dylan’s mum Jess Dylan Mitchell was born on Sunday the 8th January 2012. As a second born, he was a reasonably easy going baby who loved nothing more than terrorising the dogs and playing with his brother. As he grew, he developed a brilliantly cheeky personality and an often unsatisfiable appetite. He was
Lily’s story written by her mum Steph Lily was diagnosed with Pachygyria on the 15th May 2015. Pachygyria is a rare brain disorder due to abnormal migration of nerve cells (neurons) in the developing brain and nervous system. Because of the Pachygyria Lily has a number of health conditions including Migrational Epilepsy, global development delay, Cerebral Palsy, feeding
Roman’s story written by his mother Ellie. Roman and his twin brother Harley we’re born on the 9th March 2019, shortly after birth it was discovered Roman had serious complications and after 3 weeks in NICU at the John Radcliffe hospital, we got the devastating diagnosis that Roman had a rare genetic condition called Alagille syndrome. This
After taking a degree in zoology, Tim Haines started his career as a medical journalist and went on to work in science programming at BBC Radio and TV. After producing shows for strands like Horizon and Tomorrow’s World, he created the VFX driven natural history series Walking with Dinosaurs which is rated as one of BBC’s top 20 shows of all time.
He then left the BBC and set up the production company Impossible Pictures and created both factual and drama series such as Prehistoric Park and Primeval. He wrote several books to accompany these shows and was awarded an honorary fellowship at Bangor University. Recently he created an immersive experience called Dinosaurs in the Wild which toured the UK but has now opened in Riyadh.
Zoe has been on the Trustee Board since the charity’s creation in January 2020.
She has an extensive academic and practical background in the management of clinical placements and the support of student nurses with disabilities in practice.
As well as being Emmett’s grandmother, Zoe has previously held positions as:
Graham has been on the Trustee Board since the charity’s creation in January 2020.
He is an experienced banking professional. A highly accomplished strategic, performance, and risk management consultant.
Graham has also served as Trustee, Director and Chair of a small national UK children’s disability charity.
Dave was the first recruited trustee of Emmett’s Genies and has been on the Trustee Board since the charity’s creation in January 2020. He is the father of two children. Daniel, his son, was diagnosed with Burkitt’s Lymphoma and spinal cord compression trauma in 2018.
He is a Chartered Engineer with a background in English Literature and Creative Writing. He works as a project manager in the Engineering and Scientific Instrumentation industry. Dave is currently involved as an Associate Researcher in a UCL-led project in Paediatric Ambulatory Cancer Care.
Amy first had the idea for Emmett’s Genies in September 2019; she put her ideas into action and by January 2020 she had recruited four other fantastic trustees. On the 11th January 2020 they had their first official trustee meeting.
Amy is the mother of the charity’s inspiration, Emmett, and therefore has lived experience of having had a child who is critically unwell and who also had a wish granted. Amy has two children, works in the NHS as a Neurological Physiotherapist, having qualified in 2009, and in her spare time, loves doing charity work, playing netball, travelling and spending time with her wonderful family.
